Showing posts with label neglect. Show all posts
Showing posts with label neglect. Show all posts

Thursday, May 15, 2014

Our Hearts Hurt Over Our Aging Veterans - Does Anyone Care?

Greetings, friends,

In the last three months, we have been serving caregivers in increasing numbers from our nation's long ago conflicts.  There seems to be so little that we can do, and it is so definitively wrong that the stories don't seem true. We know that the VA testimony is happening on the Hill today, but wonder if leadership is aware of what goes on in the middle and supervisory ranks? There are so many layers at the VA that the bureaucracy cannot get out of its own way so often -- but these are Veterans.  They deserve the medical care they have earned, and they are running out of time.  Literally.

Example 1:  A Vietnam veteran who served in Vietnam, Laos, and Cambodia, was exposed to Agent Orange, and has one of the cancers and another of the conditions deemed Presumptive and service-connected by the VA cannot receive help.  VA claims no record of service; his wife sent his dog-tags to prove it. He is in hospice.  They have worked with the VA, their county service officers for the last five years, and more recently we connected them to several private foundations that have service officers to help.  What does this caregiver spouse do when the typical lengthy wait times for responses mean she may lose her husband before anyone can help?

Example 2:  A World War II veteran who fought in the South Pacific has fallen into a terrible situation where the also aging spouse did not know of the VA's responsibility to her husband.  So, when their state demanded that she sign away their home, their car, and his life insurance to pay for additional bills after he dies, she saw no other alternative. She also has to pay nearly $1400 per month for a nursing home that should be closed for neglect. She lives on less than $800 per month.  

Those of us who work in this space understand the lack of urgency.  We even understand the bureaucracy.  But how is that those who are paid everyday to help our veterans and alleviate their concerns are not held accountable? Why are there bonuses paid when someone does (or doesn't) do their jobs? Where are the people who care?

We are amazed at the influx of past conflict veterans who enter the VA system only in their later years, mostly because of their distrust upon returning home. The two families above received VA care in the past, albeit minimal (hearing aid batteries, for example), and deserve and have earned VA care at the end of their lives.  We have no idea what will transpire out of today's hearings and subsequent investigations, but we do know that if people are uncaring, aren't held accountable, and the system isn't changed from the inside out, these stories will continue to be told, and the shameful treatment of our veterans will continue.

Please say prayers today for our oldest veterans among us going through these immense challenges, and that those whose job it is to help them actually do it.  Quickly.  Efficiently.  And, with care.

The VeteranCaregiver Team

Wednesday, July 11, 2012

Exercise in Futility? NO!


Greetings, friends,

As the summer brings floods, fires, strange violent storms called derecho’s, and searing heat, it is also seemingly bringing Caregiver problems with few paths for resolution.  This concerns us and our fellow support teams since we collaborate to keep the levels of family caregiver anxiety, hopelessness, depression, and futility low. 

When we all emphasize and participate in the measured steps needed: first follow the chain of command, elevate to supervisory levels, respectfully further escalate as needed – and scant progress is made, it simply underscores the family’s frustration.  They question:  Do we really matter?  Those who support caregivers, and those who are caregivers are having an especially hard time this summer.  Mind you, no one is complaining at the difficult nature of this work, only at the fact that so many in positions of responsibility are choosing to delay help at best, or commit clinical retaliation at worst. 

In general terms, it appears there is at least passive neglect of many of the reasonably raised issues.  Below are a few comments made by Caregivers recently after they respectfully and with multiple sources of support received no responses or change in care:

  • “Why should we call and write to ___’s office again, it won’t make any difference.  We’ve been ignored since August of 2011”.
  •  “We think the only solution is to move again; this is never going to change”.
  • “We’ve been waiting and waiting for our ratings; isn’t 16 months long enough?”
  • “I’ve been viciously sexually harassed by my husband’s psychologist (in front of him), reported it to the highest levels, and there has been no update for almost a month”.
  • “My husband is supposed to have PTSD counseling every two weeks, but there are no appointments available for two months”.
  • “It’s no surprise to me that caregivers attempt suicide”.
  • “Once we asked for the supervisor’s help, all calls have gone to voicemail without a callback…”
  • “After being connected to our state’s VSO, they were shocked as they shadowed me on a single day at VA, but didn’t do anything we hadn’t already done.  We’re moving and hope it’s better at our new VA”.

  • “I’m too tired to keep fighting for his care…”"
  • I can’t do this anymore…”
  • “I can’t face 40 more years of this…”

All of this underscores the continuing needs of Caregivers, veteran, and service families.  There really must be a better way, and “doing nothing” is not a solution.  Times are hard, and a returned call or email is not asking too much of our institutions.  Failure is not an option for our families!

Keep the faith, and we will too.

Linda Kreter & the VeteranCaregiver Team